Scared and Grateful

Cleveland_clinic_2_6 You know how the US health care system is allegedly dead?  Mangled beyond recognition?  Well — don’t you believe it.  There are places here where the true wonder of good health care is visible in abundance.  The best of them, in my opinion, is the Cleveland Clinic.  I need to tell you why.

When someone you love – and live with – is sick, it’s scary.  When they’ve been through open-heart surgery, a shattered shoulder repair and a lengthy illness, it’s very scary.  That’s where I am right now. Scared.

My husband’s heart surgery was in 2002.  Five years later, he began to feel sick.  Many of the symptoms were similar to those from his initial illness, congestive heart failure caused by a faulty aortic valve.  The fear: that his valve was again failing — that the repair had not held.  So we went one more time to Cleveland to the remarkable institution where he’d had the surgery, to find out what was wrong.

After many tests, all perfectly scheduled and wonderfully administered, we learned that his heart is in good shape – at least the part that had been repaired.  The trouble was that the arrhythmia – irregular heart beat — sometimes very fast — that had also been dealt with in the surgery, had returned.  Now he’ll take a medication that, at least initially, is like being kicked by a horse.  If medication can get his heart back into rhythm, he can avoid the thing that scares me most.  It’s a surgical procedure, far less invasive than heart surgery, but still with some risk.  And it’s not fair.  He’s had enough to deal with – and frankly – so have I.  But apparently, higher powers have declared that not altogether true and this is our next mission.  So we’re on it.

The thing I try to remember and I want to tell you though, is how blessed we are to have access to the best that health care can deliver – and how remarkably common-sense a lot of it is.  This hospital is declared number one in cardiology every year because it is excellent.  The staff standards are high — and the hospital is headed by one of its top surgeons ( who operated on my husband.)  His standards are demanding and every surgeon who is hired "from Hopkins or Harvard or anyone else" still is vetted in action by the Director.  In addition, the nurses are empowered to make decisions and raise issues with physicians, the morale is positive and energetic and there’s not a nasty or impatient person behind any desk or lab coat. 

All of these truths add up to a single truth: there’s no mystery.  To get good health care we need a nimble, well-educated, trained and motivated staff and leadership to keep it that way.  Of course the equipment and endowment matter too.  But somehow in the insurance mess, the malpractice mess, the escalating cost mess – all provoking defensive driving by doctors and hospitals, we’ve weakened quality control and management in service to these other issues.  It’s a tragedy — one made far more real to me by our experience with the best – something that used to be true of our health care system altogether and sure isn’t anymore. 

I’m desperately grateful for what we are able to do to keep Rick healthy but every time I walk into the Clinic I remember again what’s going on in so many other health care sites and seeing what could makes it all even more tragic. 

LEAVING WAY TOO MANY BEHIND

Foster_2_2 This is the kind of thing my friend Cooper usually writes about, but foster care has been an obsession of mine for as long as I can remember.  Kids who, because of the incapacity of anyone in their families to care for them, get placed "in the system" and shuttled among foster homes – some group homes, some loving families and some just plain horrifying.  It’s a disgrace.

Now, there’s some particularly disturbing news.  When foster kids turn 18, they "age out" of the system.  Often they have nowhere to turn and end up on the streets, in jail or both.  They don’t know how to get a job, open a bank account, balance a check book, fill out a resume or be a family.  As of this year, reports the Pew Charitable Trusts Kids Are Waiting campaign , the number of kids aging out of the system is up 41%.  Here’s some of what they say:

The report, Time for Reform: Aging Out and On Their Own, found that although the total number of children in foster care has decreased, the number who "age out" of the system has grown by 41% since 1998. In total, more than 165,000 young people aged out of foster care between 1998 and 2005 – nearly 25,000 in 2005 alone.

"When children are removed from their homes because of abuse or neglect, we, through our government agencies, assume responsibility for their protection and care. We have failed these children if they ‘age out’ of foster care without a safe, permanent family they can count on," said Jim O’Hara, managing director, health and human services, The Pew Charitable Trusts.

"Every day we do not reform foster care, we fail 67 more young people who exit foster care completely on their own."

Think about that – 67 kids a day set loose with no moorings, nowhere to go for Thanksgiving, no apartment, job, phone, home address. 

I have no answers for this; I know there has been work to try to reform a foster care system which has been burdened by budget cuts and a surge of (truly) broken families.  But I don’t see how we can continue to allow our supposedly "child centered" society to allow these kids to tumble into adulthood with no safety net at all.  Not much help to rant without suggestions — I know that in LA for a while there was a group that held formal "graduations" and "proms" for kids aging out and that in some places there is some effort to help the kids learn how to live on their own before they have to — it just seems we should have it on our radar.

HER WEDDING, AND MINE

Wedding_dancing_3I am a huge admirer of Mir – whose blog Woulda Coulda Shoulda bears a rare warmth and humor. She’s an amazing writer and an even more amazing person. I learned, late, that several people were writing about their own weddings as a kind of virtual bridal shower. Because of my affection and high regard for her I thought I’d come along. We got married on a boat on the Monogehela River in Pittsburgh in 1971. We’re still married. Wedding_with_the_girlsI wore an Israeli Bedouin wedding dress and flowers in my hair; Rick wore a navy blue suit and a fancy tie. He spent hours in the Library of Congress researching Jewish weddings and wrote the service; I inserted quotes from William Saroyan, a speech about our families and another about the Vietnam War. Margot Adler sang Last Night I Had the Strangest Dream. My sisters and college roommates were bridesmaids. Lots of our best friends, family and even a few people you’ve probably heard of were there. It was a wonderful day. As Jenn offered a quote about marriage, I offer one from the Wlliam Saroyan speech that opened ours. In the time of your life, live—so that in that wondrous time you shall not add to the misery and sorrow of the world, but shall smile to the infinite delight and mystery of it. Be happy Mir.

YOU ASKED FOR IT

Josh_and_cindy_in_muir_woodsThat’s me with my older son, Josh, in Muir Woods outside San Francisco  — pretty many years ago.  I don’t know if you can tell but I’m pregnant with his brother.  Happy to join the virtual shower although despite my adoration of and respect for both Liz and Catherine, I’m from the generation that put their babies to sleep on their stomachs and so may sound a little old-fashioned.

1. Don’t do anything that doesn’t feel right no matter whose advice it is. 2. Trust yourself. 3. Remember that everybody makes mistakes and anyway a child is not a product, she is a person. You’ve heard that kids are resilient. They are. Do your best with love and if you don’t dwell on your mistakes neither will they. 4. You can’t turn a child into someone. You can only help them become the best somebody they already are. 5. Don’t be afraid to say no. Parents who don’t set limits and help their kids learn self-discipline are selfish. It’s easier but it’s not right. 6. No experience is wasted on a child. Maybe they’re too young to remember, but if it happened, it had an impact. So share as much of what you love as you can – music, museums, trips to Timbuktu or Target — poetry, cooking, washing the car. 7. No child ever went to college in diapers. 8. Listen to experienced people you respect, preschool teachers, friends, even, God forbid, your mother.  Experience really is a great teacher.  Then, though, think it through and then do what you think is right. 9. Everything is not equally important. Pick your fights and win them. 10. Leave time to just be. Lessons are great but quiet time is where imagination and a sense of self emerges. 10. LISTEN to your kids. They are smart and interesting and wise and if you respect them you have a far better chance of having them respect you. 11. Did I say trust yourself?

With love, admiration and the joy that comes from knowing all you wonderful, poetic and caring, committed and in one case, very new mothers on the occasion of this lovely virtual baby shower.

A REBIRTH OF WONDER — DEATH AND LAWRENCE FERLINGHETTI

Ferlinghetti_1
In A Coney Island of the Mind, San Francisco poet Lawrence Ferlinghetti wrote of a search for a rebirth of wonder.* It’s out there – that wonder — sometimes in the strangest places.

Here is what I know: Some things in life surprise us — not with shock but with wonder. Today we flew to Boston for Rick’s dad’s funeral. It was a beautiful day – sunny and almost as warm as spring. With Rick and me traveled not only our remarkable rabbi, but also two of Rick’s dearest friends. Despite the mid-week madness of Washington, they had chosen to leave their work and fly north to support us. In addition, the sisters of two friends unable to come arrived as their surrogates. That was the first wondrous thing.

An Orthodox funeral is deceptively simple. The coffin is a plain pine box held together with pegs. As it leaves the hearse it is borne by the mourners to its place over the grave. On the way, Psalm 91 is recited and the procession stops seven times. Once the coffin – reverently referred to as the “aron” is in place, the service proceeds.

Cemetery_1_1With our rabbi leading the service, each step along the way was accompanied by warm and loving exposition: Why do we do this? — How should we participate? — What is the blessing of bearing the aron and seeing to its burial? As he led the prayers and answered these questions, it was with such love and individuality that participation became a privilege and a comfort. That is the second wondrous thing.

As the service moved toward conclusion the rabbi explained the final act. We, not the cemetery employees, would bury the coffin – my husband’s father. One by one, we took up the shovels and poured earth into the grave. Not until the grave was full and the coffin covered did we leave… and then, all those in attendance formed a double line so that Rick and his brother could pass through, moving from the funeral to the initial mourning period, or Shiva.

This last, loving duty is perhaps the most remarkable of what an Orthodox Jewish funeral offers mourners. At the funerals of each of my parents, way before we moved into this new life, the cemetery distributed little envelopes of “dirt from Israel” which attendees dropped on the coffin. We all left then, and the cemetery employees finished the job.

I told my sister about the custom that mourners fill the grave, thinking that she, who is not thrilled with our decision to live a more observant life, would be appalled. Instead, she said “That’s so great – leaving them covered and at peace. I felt so badly leaving Daddy there so exposed….” That’s probably the most critical. Imagine the difference, at the close of such a painful day, filled with loss and grief, if you knew you’d bid a farewell that leaves your loved one cared for and at peace. Imagine, too, that those you love – beloved friends and family members – have all left a part of themselves there in the grave; that the final resting place includes their loving labor. That’s the final wondrous thing.

We’re nowhere near the Age of Wonder, that’s for sure. But we are occasionally given a peek. Today the window opened and a bit emerged — not quite a rebirth but present nonetheless — just enough to help us see what’s possible. If that’s not wonder, I don’t know what is.

*I Am Waiting
I am waiting for my case to come up
and I am waiting
for a rebirth of wonder
and I am waiting for someone
to really discover America
and wail
and I am waiting
for the discovery
of a new symbolic western frontier
and I am waiting
for the American Eagle
to really spread its wings
and straighten up and fly right
and I am waiting
for the Age of Anxiety
to drop dead
and I am waiting
for the war to be fought
which will make the world safe
for anarchy
and I am waiting
for the final withering away
of all governments
and I am perpetually awaiting
a rebirth of wonder

SNOW AND SORROW

Feb_2007_snow_street_cropped_4

What a perfect Sunday.  If you’ve never lived around snow, you can’t imagine the wonder of its first falling – big wet flakes piling up, covering dead leaves and dirt, silencing passing car noises and footsteps.  You take a step and there’s a palpable give in the surface, and a wonderful squeaking sound.  Here’s how our street looked and…

Feb_2007_snow_1_2This is what our house looked like yesterday — the whole neighborhood was one big fairy tale.  Some friends with (wonderful) small children invited us to come watch them slide down the local sledding hill.. an invitation we accepted happily.  It was such a joy to watch them revel in the snow, the speed, the make-believe strawberry/snow candy, and manufacture of snowballs aimed, somewhat haphazardly (they are little) at us.

In the evening some friends who had parked their car in our driveway came over to dig it out and stayed for soup and toast.  It was lovely.  After they left, we both fell asleep during the Oscars and woke up in fine fettle.  And then.

Of course, there’s an "and then."  What did you think?  At around 9:30 this morning my husband called me to tell me that his father had died.  He was 87 and quite ill, so it was not, in that sense, a surprise, but it was still painful.  He’s lived in LA for years, we saw him less often since we moved back east — and it was a complicated relationship, but still…  I’m sitting here now listening to my husband make arrangements and work with his brother in Philadelphia and our rabbi to get things together — and worrying. 

I have some strong opinions about all this myself and am having a terrible time keeping my mouth (almost completely) shut about it all.  It was his dad and his reactions are the ones to be honored but as the one who usually does all these kinds of things it’s tough to stay on the sidelines – where he seems to want me to be. 

I worry, too.  How will it be when the arrangements are done, when there’s no place left to call?  It’s my prayer that our new, observant life will help to support and protect him as he deals with the loss of the last of our four parents to leave us.  And help us travel this newest journey together.  There are rituals to follow for a year, so we will have some structure to his grief. For that I’m truly grateful.  Not only does it offer us the comfort that comes with faith and the privilege of a community of loving friends – it also has served to bring Rick and his brother closer, since they also are observant – and that has made making all these arrangements much easier.  You never know where the blessings are going to land, I guess.  Wish us well.

UNKINDEST CUT

Indians2_2 I’m having a very hard time.  For a project, I’ve spent most of Wednesday reading infertility, IVF, adoption and other blogs written by would-be parents who are unable to conceive.  This 25-year old photo is of two boys, my sons, conceived in no time.  Granted there was a miscarriage in between that hit us very hard, but the blessing of these two little boys came rapidly and without incident.

I’m familiar with this issue – I have so many friends with adopted kids — but the articulateness of these women and the agony of repeated technical failures they describe, is unthinkable.  It’s so ironic – years spent in your twenties worrying that you ARE pregnant, then this.

I can’t imagine many experiences more painful — though they existed even in biblical times (remember the pain of Sarah, Hannah and Rachel?) and they’re for a lifetime.  "Do you have kids?" is the classic ice-breaker.  It just reminds me one more time of the blessings in my life.  It’s not that I don’t appreciate my kids every day; as my sons will tell you I’m a bit over the top where they are concerned.  And I’m tiresome on that fact that they’re a blessing and a joy.

What I don’t often consider is the fact that we had them so easily – that they are, quite literally, a gift.  My heart breaks for my sisters not blessed with this privilege – and I won’t soon forget their pain. 

WINE, WOMEN AND PLAY DATES (Yeah I’m late on this)

Wine_and_playdates I must have been one of the last people on the planet to hear about this ruckus — a profile of mothers together at the swing set, pushing the kids with glasses of wine in hand.  As I read in Her Bad Mother, the story appeared on my old alma mater THE TODAY SHOW, where I worked for nine proud and happy years.  I don’t know whether I’m more upset with the content of the story, the reaction or the fact that TODAY is, generally, so much less substantial than it was when I worked there.  ADD THIS: I just read most of the back story to all this at the source:  Melissa Summers’ Suburban Bliss.  If even part of it is true (and I have no reason to doubt any of it) then it’s far more a scandal about television than it is about drinking and moms.  PLEASE READ THIS.  It also includes links to many comments on the matter.

As I said before I read Melissa’s very troubling post, "This story looked unbalanced to me – at least the video did, so I was glad to learn from Jenn Satterwhite’s Mommy Bloggers post that TODAY is planning a follow-up on Friday."  In the mean time take a look at what Catherine (Her Bad Mother) and others (Google Blog Search turned up dozens of posts) have had to say about this.  I want to watch the follow-up before I say anything.  I lived around bad alcohol issues at one point in my life and am very sensitive to the issue so am remaining silent for now.

PLEASE COMMENT though if you have thoughts about this.

ALL MY LIFE’S A CIRCLE, SUNRISE TO SUNDOWN…

A_girls_blurThese little girls are dancing at their cousin Judah’s Bar Mitzvah. It happened Saturday and was quite wonderful. At a service that morning Judah read the entire portion of the Torah – long and intricate – in Hebrew in a loud, confident voice. As he finished, the 12 and 13-year-old boys who are his friends stormed down the center aisle of the synagogue to congratulate him and shake his hand – recognizing and celebrating his new status.

Once again, I was struck by the value of religious observances to give our lives shape and meaning – and by how much this simple fact still astonishes me. The rite of passage — an adolescent reading from the Torah before the congregation, is fraught with meaning. It’s an acknowledgement of impending adulthood and, even more critically, of entry into the covenant among the Jewish people. I love it.

Each part of the day was tied to learning (another lesson on this journey – you don’t study, you “learn”. ) A talk by the young Bar Mitzvah on the Torah portion he had just read, talks during lunch and through the afternoon, by uncles, cousins and more. At the evening party, father and son spent close to an hour talking through the final part of a complicated set of writings. Throughout, we were reminded that great though parties and presents might be, what matters most is the move toward becoming, each day, a better and holier person.

As we listened to the teaching, father and son trading riffs on the material, a friend, sitting beside me, leaned over and said “You aren’t as far as you think from all this. Your great grandparents, and mine, were doing this. And now you’ve returned to it.” Blew me away.

A_boys_playThis beautiful day, and the loving, welcoming family that had included us in their celebration, offered a great privilege. Together we welcomed a new member of tribe, celebrated his family and shared their pride. Dancing, singing and, with delight, watching everyone spinning through the music and happiness, we reminded ourselves, and one another, of a treasured heritage – one that this young man’s celebration joins as the next link in the chain.

Teach Your Children Well

Little_in_snow_hug Much of what I enjoy about other blogs, particularly "mommy" ones, is the sense of irony that is so different from my own sentimental view of parenthood.  Brutally honest and often painful, they reveal wounds and issues I don’t think I could talk about on line.  Loving mothers and beautiful writers, women like Liz at Mom 101, Mir at WouldaCouldaShoulda, Kristen at Motherhood Uncensored and Jenn at Mommy Needs Coffee are all gutsy beyond measure in their honesty.  Mocha Momma Kelly, Liza  from Lizawashere and BeenThere’s Cooper Munroe are just as honest but with a different tone – one more familiar to me.  All perspectives are worthy, moving and wise. 

Here’s one of the few times I really feel generational difference though.  These bloggers are substantially younger than I am; I’m old enough to be the mother of most of them.  I don’t feel that difference often, but today, with one of my boys gone already and the other leaving tomorrow, I just can’t get un-sugary. 

The great gift of raising children is I am sure the most profound privilege life brings us.  The pleasures are infinite.  To my delighted surprise, they don’t stop when these tiny people emerge as full-blown adults, taking their places as productive, loving, principled men.  The entire time they, and Josh’s girlfriend Amy, were here this week, was so great that I’m struck dumb with gratitude and love. 

For an entire afternoon excavating six boxes of treasures from 20 boxes of childhood stuff — from broken Nintendos and the Jerry Garcia’s death issue of Newsweek to Double Dare sweatshirts and high school yearbooks, they worked, sorted, laughed, read aloud, complained, laughed some more, and got it all done despite my best efforts to help.   I wish I could tell you what it felt like to see them laughing together over a first grade "book" Dan had written or once-treasured but minor value baseball cards, remembering the pleasures and joys of their lives.

Nobody’s life is perfect and our family certainly has had its share of pain, but there is a beautiful foundation that holds us up – draws us to one another and fills us with love. That’s corny.  We have two sons who are funny and attractive and honorable and productive and considerate and who clearly love us.  We are grateful.  That’s corny too.  I don’t know how to say that with any self-restraint or discipline – stylistic or otherwise. 

I adore these young men even as I struggle to retain the distance they deserve (reasonably successful), welcome them when they want to be with us (easy as pie), shut up when they need to be someplace else( do my best), keep my mouth shut when I disagree (getting better all the time.)  I am very proud of their self-reliance and accomplishments, their candor about obstacles in their lives, their incredible humor — they are both very funny, particularly when they are together — and their gentle, loving souls.  They’ve accepted our newly religious lifetstyle with interest and respect.  They are also very good to one another.  I revel in their friendship, all the flying back and forth for concerts and birthdays, and great gifts they give one another.

In other words, I’m a corny, unoriginal mom.  My sons have brought an unanticipated portion of joy and satisfaction, fun and admiration, adventure and idealism, into my life.  And they love us.  Stupid us.  Despite all the mistakes and complications.  I’d love to be able to be a bit ironic about it, to ditch what my kids call my "pink Cindy glasses" for a while just to see how I would sound, but it ain’t gonna happen.  So I hope all my edgier colleagues will tolerate this gooey post and understand my inability, tonight, as the year winds down and this family visit winds with it, to say anything except "God I love my kids."